Luulyo 2021: Beta-thalassaemia waa xaalad la iska dhaxlo oo ay keento isbeddellada hidde-sideyaasha ku lug leh soo saarista qayb ka mid ah haemoglobin, borotiinka u qaada ogsijiinta jirka oo dhan. Isbeddelladan ayaa mamnuucaya ama xaddidaya samaynta haemoglobin, taasoo keenta yaraanta unugyada dhiigga cas ee bislaaday iyo dhiig-yaraan joogto ah, iyo sidoo kale xad-dhaafka birta.
Isbeddelka keena beta thalassaemia wuxuu saameeyaa 80-90 milyan oo qof adduunka oo dhan, ama qiyaastii 1.5 boqolkiiba dadweynaha.
Children frequently inherit the gene mutation from parents who are carriers but show no signs of the condition. The child has a 25% probability of acquiring beta-thalassemia and a 50% chance of being an asymptomatic carrier like their parents in this circumstance.
Many individuals with beta-thalassaemia need regular blood transfusions for the rest of their lives (transfusion-dependent thalassemia), which can cause a variety of health problems, including iron excess, which can harm the heart, liver, and endocrine system.
Kuwo kale waxaa laga yaabaa in aysan u baahnayn ku shubis joogto ah si ay u badbaadaan (ku-tiirsanaan la'aanta dhiigga), laakiin si kastaba ha ahaatee waxay la ildaran yihiin xinjirowga dhiigga, dhiig-karka sambabada, shaqada kelyaha, boogaha lugaha, iyo dhibaatooyin kale oo caafimaad.
Beta thalassaemia waxay u fidaa si ka dhakhso badan sidii hore
People from the Mediterranean, the Middle East, North Africa, India, and Central and Southeast Asia have been reported to have the highest prevalence of beta thalassaemia. As a result of the rise in modern migration, instances are increasingly sprouting up in more places.
Wadamada ku yaal koonfurta Mediterranean-ka ayaa kor u qaaday kheyraadka si wax looga qabto baahida sii kordheysa ee bukaanada beta-thalassaemia. Iyadoo khubarada caafimaadka iyo siyaasiyiinta Waqooyiga iyo Galbeedka Yurub ay garteen isbeddelkan, waxay ka maqan yihiin xog adag oo ku saabsan sida uu cudurka u dhacay iyo qaababka. Way adag tahay in la sameeyo kiiska maalgelinta hindisayaasha lagu xallinayo dhibaatada xog la'aan, taasoo adkeynaysa bukaannada inay aqoonsadaan bixiyeyaasha saxda ah.
Beta-thalassaemia & COVID-19
Daawaynta beta-thalassaemia waxay u baahan tahay tiro badan oo aqoon iyo agab ah, oo ay ku jiraan ku-deeqidda dhiig ammaan ah. Faafida COVID-19 waxay saameyn weyn ku yeelatay bixinta dhiigga caalamiga ah, taasoo keentay hoos u dhac ku yimid deeqaha dhiigga ee inta badan waddamada EU iyo arrimaha gaarka ah ee waddamada soo koraya iyo kuwa dakhligoodu hooseeyo ee leh kheyraad xaddidan iyo tirada bukaannada jirrooyinka badan. Ka fogaanshaha deeq-bixiyeyaasha iyo awoodda xaddidan ee goobaha deeqda, iyo sidoo kale habaynta dhiigga iyo joojinta silsiladda sahayda, ayaa dhammaantood gacan ka geystay hoos u dhaca deeqaha dhiigga.
Nidaamyada daawaynta cusub ee beta-thalassaemia
The only solution for beta-thalassemia now available is a stem cell transplant, although many individuals may not be eligible. Only around 10% of patients who are eligible for a stem cell transplant actually get one, owing to exorbitant expenses or a lack of a donor. Another long-term strategy is prevention through carrier screening and education, which has proven to be effective in several countries.
Si kastaba ha ahaatee, horumarradii ugu dambeeyay ee muuqaalka daawaynta ayaa bixiyay doorashooyin aadka loogu baahan yahay oo wax looga qabanayo dhiig-yarida ay keento beta-thalassaemia iyo u oggolaanshaha bukaannada inay ku tiirsanaadaan ku-beddelashada unugyada cas ee dhiigga.
